Halloween 2017

6:30 PM at Grandma’s house.  William was dressed up as a Lightning McQueen Car Racer.  We took him around the neighborhood; unfortunately not that many houses participated in this tradition Trick Or Treat so we decided to get back to the house but William didn’t want to go back; he wanted more candies.

This year is the first year that William actually leaned how to go Trick or Treat. He held on to his basket; ranng the door bells (several times!) and waited for candies.  Previous years he was just sitting in the stroller and we held the basket for him.

The fact that he refused to get in the house proved that he was having fun (or just like candies).

ABA Session In the Community

Sat 11:00 AM at Fountain Valley  Promenade.

Halloween is approaching so I asked Mrs. Nhu if it’s ok to have ABA session while William going Treat or Trick on the Halloween day so she suggested to cancel the Friday session and have the session on  Saturday at the shopping center in Fountain Valley.  We agreed to meet Ms. Han in front of the Albersons supermarket.

I dressed William up as a car racer Lightning McQueen and took him to the meeting place.  10 minutes passed 11:00 I still didn’t see Ms. Han anywhere, turned out she went to wrong location and was waiting for us there.  So while waiting for Ms. Han to come to us, I took William for Treat or Trick.  At first William did not want to walk but I told him we could get candy if he walked so he started to comply.  We walked along the shopping center and went in each store to get candy.  William had a hard time to pick the candy when people presented a bowl of candy in front of him.   Also when people hand him the candies he reached out his hand to take it instead of showing his basket so that they can put the candies in.  It was his first time so maybe he was overwhelmed and did not know what to do.  It struck me that I did not teach him that!

We found a table near by the pizza place, so we sat down to rest and let William enjoyed his earned candies.

Few minutes later Ms. Han found us; we continue our way to knock on the stores for more candies.  It was about noon so we decided to go back to the pizza place and have lunch there.  I bought a slice of pizza and 1 drink for William.  We found a cozy corner inside the restaurant and ate lunch there.  William kept standing on the chair and go under the table; until I let him watched the Winnie the Pooh clips that he sat still.  There’s a game room inside the pizza shop so we let William play in the game room after lunch.

We left the place around 1:30 PM.

Bill Barber Park

Water is all over his face and shirt

Friday afternoon, there’s no ABA session today so we decided to take William to the park in Irvine.  He loved to sit on the turtle and play with water, getting his shirt all wet.

Then we had dinner at the Ajisen Ramen in Diamond Jamboree Plaza.

 

Special Combination
Fried Octopus

Neurologist Meeting

Friday morning, we had appointment to see the Neurologist Thanh Le in Newport Beach.   Its location is hard to find so I ended up park in the business center near by and walk to his office.  The building is so beautiful with water fountains and green landscape.  His office is on the 2nd floor, William enjoyed riding the elevator as usual but he he cried and kicked when we approached the office door;  once we got inside he refused to get off the stroller.

I filled out all the paperwork at home so it didn’t take long to check in.   We waited for only 5 minutes then the lady took William to the scale to measure and weight him.  37 inches and 36 Lbs.  About 10 more minutes waiting in room #1 for the neurologist Thanh Le.   The doctor came in, said hi to me and started talking about Autism.  He didn’t try to gain William’s attention or communicate with him but I know he was observing him while talking to me.  About 10 minutes later he turned to William, gave him a little tape measurement so that William can play with and he has another one that he used to measure William’s head.  Then he used some metal tool to knock lightly on William’s knees.

He said William met all the criteria of autistic.   The most important thing is William didn’t look at him when he walked into the room (no eyes contact).  Dr. said normal children would just look at the him  and use eyes to observe.  Normal children would point to this or that when they like some thing, but William would just take my hands and lead me to the things that he likes.  Dr. Thanh explained that autistic children would not understand body language.  If we say the same sentence in 3 different voices: normal, angry or happy. Normal children would understand that but autistic children only understand the words (if they can), not the differences in the way we say.  He used Blind and Deaf person for examples a lot.  He said we don’t yell at Deaf people because we know they can’t hear us.   Autistic Spectrum Disorder, why they call it Spectrum?  Because spectrum is a range.  1 end is Autism, in the middle is normal people and the other end is Politician.  A Politician can talk about 1 small for 2 hours, while Autistic person doesn’t want to talk at all.

He said, ABA services is more important than speech therapy because William doesn’t have problem with speech at all, he can echo what we said.  It’s just that he DOESN’T WANT to TALK! and it’s one of the characteristic of autism.

He also mentioned that in San Jose there’s a company that has a whole building for autistic people to work where they provide foods, shower and couches/beds facilities.   The doctor was trying to say that there’s hope for my boy if I raise him in a right environment, he can find a job and work as normal person.  But first need to teach him to talk so that he can communicate even just at the minimum level.

The meeting took about 30 minutes total, I think, and Dr. Le gave us a report right after that. And he said it’s recommended to see a neurologist every year.

Dr. Thanh Le has been a neurologist for 20 years so I trust his expertise in this field; and plus I really like the way he talked and explained things to me, very easy to understand; and his approach of waiting 10 minutes to interact with William to make sure William is getting used to his presence in the room is brilliant.

Dr. Thanh Le’s office – William was not happy to be here
Room #1, waiting for the doctor.
Newport Plaza
Nice landscape with water fountains

 

Dr. Thanh Le uses a metal tool to check William’s knees

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Refused to Go to Daycare

Thursday afternoon 1:30 PM.  As usual I picked William up at Mitchell school and dropped him off at Children’s World Preschool.  But today he refused to get off the car seat and go in!

I said, “Let’s go in”

He said, “No”.  I asked why not but he didn’t say anything.  William just learned the word “No” and he has been using it a lot.

Every time I tried to unbuckle the car seat straps, he put it back in and cried and kicked his legs.  So I asked Mr. Gary for help.  He came out to the car, William did the same thing: cried and kicked his legs.  Gary was so determined to take him so he ignored his behavior.   William’s head almost hit the car floor while he was trying to escape.  Mr. Gary carried him inside while William still crying; and took him to the kitchen, let him sat on the counter and offered him water.  I peaked thru the window and he still crying but I needed to go back to work.

Fri day afternoon, William did the same thing.  This time Mr. Gary was not there so Mrs. Anita (new teacher) came out.    William shook his head refused to go in.

 

New ABA Staff – E. Afzal

Wednesday 5:30 PM.

As I was told before, today we met a new ABA technician named E. Afzal; she’s a young Indian lady.   Supervisor Kevin came too.  William mostly came to Kevin, I guess because he needs time to make acquaintance with Ms. Afzal.  At first I didn’t see her smile  but maybe she was nervous being with a new client?  Later on she smiled more but I’m not sure if William likes her yet.

Later Mrs. Nhu came to talk about the situation with Magellan: we still have not heard from Magellan yet and the contract with RCOC is about to expire in 2 weeks.  I’m a little bit worried.

Cried at School

Noon 1:10 PM.  When I picked William up at Mitchell school, Mrs. Hana said he had a hard time today.  He refused to sit to eat breakfast and lunch, he cried several times and ran to sit in a corner.  On the communication book on Monday, the note said he cried multiple times too.  So i’m not sure what’s going on with him.

As usual, I put the milk and hot dog on a small chair in my car so that William can have it if he feels hungry.   He took the milk to drink, then grasped the hot dog! it’s the sign that he’s extremely hungry.  As the teacher said, he didn’t eat anything so that explained it.  Then he took the hot dog and climbed to the back of the car to get to the trunk! He sat there and ate his hot dog; he refused to get back on the back seat.  He likes to hang out in the trunk a few times before but would climb back to the back seat after few minutes.  This time he stayed there for a while.  It looked like that he wanted to sit in a corner by himself.

When he almost finished the hot dog, he climbed back out to the back seat and came to the driver seat and hang out there as he normally would.  Few minutes later he pooped.  Right after he finished pooping, he pushed his nose against my nose and smile!  So was it because he had an upset stomach that he behaved the way he did?  I hope that’s just it.

He felt asleep on the way to Children’s World preschool; and when I put him down on his tiny bed, he was still sleeping.

Welcome Back Ms. Han

Monday afternoon 5:30 PM.

Mrs. Han from ABEST is now back to teach William starting this week for 3 days a week (Mon, Tues, Thurs).  I think he remembers her because he acted so happy to see her.

Ms. Han and Annie were the first ones to teach William since we started with ABEST.  Ms. Han came to Children world’s preschool for almost everyday in the first 2 months when we got the fund from HealthNet insurance.  There she helped him eat using utensils and read books to him.  Other kids liked her too that they hang around when she read books to William.

I just wish that with the funding source from Medi-Cal, we can have ABA services at the day care.

Currently with the funding source is RCOC, they don’t fund ABA services taken place in the day care, in home service only.  So this is why William can only receive ABA services at home AFTER day care hours, 5:30 PM – 8:15 PM everyday.

At the day care after his nap, William always finds a corner to sit in and not playing with other kids; this is the reason why I’m so desperately hoping we’d get funding for ABA services at the day care so that there will be someone there to “drag” him out of his favorite corner and to learn how to interact with peers or at least enjoy the playground or play with toys instead of sitting alone and watching other kids having fun.

Welcome back Ms. Han; We’re happy to see you, a very nice young and patient lady with a soft voice.