Another Day …

Another day at the day care. As soon as he went thru the little door, he sat down on the floor and scratched his legs! So I went in, pulled out the chair and told him to sit on the chair, not the floor.

I remember when he first started here, he’d lie down on the same spot. So nothing has improved. He has no awareness that people would get in /out that little door and might step on him.

I’ll try to remind him not to sit on the floor or ground; hopefully one time he’ll stop doing that.

I took this picture thru the shelve, the little door is on the right.

Lonely Boy

Tuesday 8:30 AM

Dropped William off at the daycare today, while I was sign up, he sat right next to the kid entrance door with the lunch bag next to him. So I came in, put his lunch back away and asked him to go outside to play. He said his belly hurt and wanted me to rub. So I told him to wait because I needed to replace his swim suit with the new set I bought from home. He followed me outside to the wooden shelve where they put the children’s swimming stuffs.

So I rubbed his belly; then he wanted to go to the restroom. He sat on the toilet for quite a bit. Then when he was done, I asked him to go outside but he refused. He sat down on the floor in the corner next to the restroom. I told him to go outside several times, finally he did but as soon as he got out of the door, he sat down on the ground! I told him to go sit on any chair because the ground is dirty. He refused to stand up; until I told him I’d rub his belly if he sits on the chair. That’s when he followed me to sit on the bench in the playground. I rubbed his belly a little bit more; but I needed to leave for work so I told him to continue sit there.

As soon as I stood up and turned my back about to leave, he went back inside and sat in that same corner! I came in to ask him again to go out and sit on the chair. “I want mama to go to work!” – he said.

I guess he wanted to be left alone.

Left is the restroom, right is the door to the play yard. He leaned on the door that leads to Yellow Bird Classroom.

I don’t mind if he sits by himself but the fact that he sat on the floor near the restroom really sadden me. Plus, he leaned on the door; what if someone opens the door then he’d get hurt! After 4 years at the same daycare, I thought he’d be better at this place but obviously nothing has changed. He acts the same way as did the first few months when he started going here.

I looked around, Ms. Rose Mary and Jennifer and the new teacher were busy outside with other kids; no one really paid attention to him.

I left the daycare with broken heart and tears on my eyes. What kind of a mom I am that I left my only son there feeling lonely and unhappy. But there’s really nothing I can do; unless I quit my job and stay home to take care of him. Finally, I can’t do that.

Closer look. He has been itchy a lot lately.

Special Treament

Dropped William off to the day care in the morning as he still on the summer break. I went in to take his swim suit home and put in the new set for this week. I turned around and looked for him in the playground but could not find him. Turned out he was sitting on Mr. Gary’s laps in the office. Whenever Mr. Gary is in the office, William always comes there and hangs around. It’s nice of Mr. Gary that he lets William plays there instead of asking him to go to the playground.

As I saw William scratching his armpit, I walked in the office and tried to put some itchy cream on him. Mr. Gary asked “Eczema?”. Yes, I replied. Then he said if I’ve tried Coconut oil yet. To respond to my surprised look, he stood up and went to the counter near the restroom and took out 1 big Coconut Oil container; he put his hand in and took out some; rubbed both hands together and messaged it on William’s back. Then he put some on his neck too. It’s no question that Mr. Gary loves and is very good around children. And the children love him too; and so does our William.

Mr. Gary messaged Coconut Oil on William’s back.
Lunch menu for this week.

He told me to bring a jar and get some home to try it on William to see if it works for him before buying it. He said he knew about this Coconut Oil for about 7 months; and that it works on other children. Hopefully it’ll work on William too.

4 A.M!

William always has trouble sleeping at night; he usually falls asleep no sooner than 11:00 PM when he takes a nap at the day care. If no nap, he can fall sleep easily around 10:00 PM.

But today, it was 4:00 AM! This is the first time he slept that late. I recall he was jumping up and down on the old mattress that we moved to the bonus room; and he even walked on the trek mill with me. One would think all the activities would wear him out and he’d sleep easily but NO!

He had some caramel pop corn while jumping around; not sure if that’s the cause?

Typical ABA Session

Currently, we have ABA sessions on M, W, F, from 5:30 PM – 7:30 PM. Mondays & Fridays we have Thomas as William’s BT. He’s been with us for about a year now. On Fridays we have Brenda; which is our new BT for about few months. Brenda is also responsible for Social Groups on Saturdays from 9:00 AM – 12:00 PM.

A typical ABA session at home would be Thomas/Brenda asking William what he wants to do or what game he wants to play. Most of the time I’d be cooking our dinner while listening to their conversations. Some times I sit down and watch them. We’re so lucky to have BTs who are patient and dedicated to their job.

ABA session with Thomas

Now it’s summer so some times we go out to the back yard and William plays in the trampoline. We also walk around the neighborhood to practice our goals of “Asking permission/Elopement”. William tends to run off to whatever he wants so the goal is for him to ask permission before he goes and to stay next to mom & dad when going out.

Handsome Boy

William rarely looks into anyone eyes. Eye contact is 1 of the goals in ABA sessions; we always try to ask him to look into our eyes when he asks questions but he never really does it. Some times it’s just a quick direct look but then he looks somewhere else.

This is 1 of the reasons why we can never get him to look at the camera when taking pictures. Another reason being he does not like to take picture.

I Want To Scratch!

“I want to scratch!” is the phrase that William has been using every day for a few months now. He loves to be massaged/scratched on his back. In the morning, in order to get him out of bed, i have to scratch on his back; and few more times before heading to school; and then few more times at night too. I’d count from 1 to 3; and often time he would ask “I want scratch so many times!”, which simply means he wants more.

Why do you want to scratch? – Because it hurts!

But it’s not really because he’s hurt, he just feels itchy.

We always apply lotion all over his face & body after shower; in the morning after washing his face, I’d put more lotion on the itchy areas but he still scratches here and there. Some day is better than the other days. Like today, the teacher said he was scratching all over his body so she took him to the nurse to put on some hydrocortisone cream.

Bed Time

William really has trouble with sleeping; he doesn’t fall asleep until 11:30 PM or so; some times he’s still awake at 1:30 AM!

By 10:00 PM, I’m too tired; felt asleep several times and woke up, still finding him to sit on the bed and play.

He wants the light to be on ALL the time; both lights: 1 over the bed and 1 on the night stand in the corner. I waited until he sleeps and then turn off the light in the corner. If he suddenly wakes up in the middle of the night and he sees the light is off, he’d cry and ask to turn it on.

Here’s William’s normal schedule: Wake up around 7:30 AM in the morning to go to school; school is over at 1:00 PM (or 12:00 PM for summer school) then I take him to the Children’s World preschool where he can have a short nap (teacher wakes him up around 3:00 PM), and he stay sthere until 5:30 or 6:00 PM when Tim comes to pick him up. Then he has ABA session at 5:30 PM – 7:15 PM every other day. We let him have dinner around 7:30 PM. A full day like this one would think he’d be too tired and can sleep early, but No!

He only can sleep early if he doesn’t take a nap at noon.

Another bad habit that we don’t like. He loves to bring the stuffs that he likes to put it all over the bed; and he doesn’t mind to lie on them! Lately it’s a pile of game cards (Uno, etc) that he stores in a big can. He takes this can with him every where we go: grandma’s house, park, etc.

A big tin can is full with cards and other toys.