Back To School

Monday 8:00 AM. After 2 weeks of break, it’s back to school time. I woke William up around 7:25 AM, he refused to get up as usual, and the hardest part is to make him brush his teeth. Of course we don’t have much time in the morning so I ended up brush his teeth for him after all whining, crying, kicking. After brushing teeth, and his face is washed, he runs to sit on the bed and smile: a totally different attitude than few minutes ago. This happens every morning; nothing is improved!

Then I put lotion on his face, especially over his eyes because if I don’t, his skin will be dry and he’s gonna scratch his eyes like crazy. Lotion really helps a lot. And more lotion all over his body before I dress him up: jean, uniform polo, socks, jacket and ready to go! I try to finish everything by 7:45 AM so that we’d be at school before 8:00 AM. The teachers usually pick up the kids around 7:50 AM from the bus, so if we miss this time, we’ll have to wait till 8:00 AM, when the teacher comes out again to pick up whoever was not picked up yet.

Winter Break

Thursday Morning 8:30 AM

There’s no school in the morning at Lincoln school so William stays at the day care full day. Dropped him off today at the Children’s World preschool, he was so ready to get out of the car and go in but then when we got to the little door after the big door, he just sat there and refused to get in. I pulled him thru the door, then he lied on the floor just right where i put him down.

He always does this when I take him there in the morning, so nothing has changed for the last few years. That makes me feel sad because it shows that he has not improved much. He doesn’t get it that we should not sit or lie down on the floor right on the entrance; people get in and out of the entrance so they’d have to just step over him to get thru.

We sent him to this day care since he was 2, and now he’s 5. It’s been 3 years and his behaviors and perception has not been improved at all!

Turning 5, Celebrate Birthday at School

Thursday.

William’s Birthday is Nov 24 but school is closed the whole week (11/16 -11/23) so Ms. Newman decided to celebrate his birthday few days earlier.  I asked if I could bring a cake but she said she was gonna bring cup cakes so I can bring cookies and juice.

So after work I went to 85 Bakery to buy 3 little fruit tarts for the teachers as a appreciation token in the spirit of Thanksgiving.  Then stopped by Walmart to get 1 cookie box, 1 pop corn box and 1 pack of juice.  I was gonna go to Costco but it was too late and dark; and Costco is far.

Picked him up at school, he seemed to be happy wearing a Birthday hat.

Happy Birthday my precious boy!

 

I had William trace out the card, and color the red heart.

The card we got for the teachers to say THANKS

ABA Supervisor Decided Not to Send BT to Daycare

Wednesday 10:00 AM.  I texted Huy, the supervisor, about what happened at the daycare yesterday that Mr. Gary was so upset and wanted me to call him.  So Huy called me to talk about it.

Huy came with our new BT Anthony to the daycare yesterday (3:30 – 5:00 as schedule); Huy talked to Ms. Chastity and Ms. Angelina asking how was William doing without aid for the past 2 months.  They both said William has been doing great.  So Huy came to Mr. Gary and asked the same question.  At first Ms. Gary said it William is doing fine but then went on saying that William is talking deficit, and that William doesn’t want to play with other kids so Huy should set up some activities like small group to help William.  Huy replied that it’s not his job to do so; he and his staff are here just to support William, not to interrupt or pull William out of his daily schedule.    I think this is why Mr. Gary is mad because Huy would not take his advise and refuse to do so.

Then Huy concluded that it seems to him William doesn’t need any help at the daycare any more so he will not send BT to the day care!  I felt very sad about his decision; he only came for 1 and 1/2 hour and only based on the 2 teachers’ words who each has about 10 children to watch.

Dropped William at the daycare as usual, Mr. Gary was sitting in the yellow bird classroom, and gave me a signal that he wanted to talk.  So after I put William to his bed, I came to him.  He was very mad, “This is exact his words:  there’s nothing else I can do here”.  Mr. Gary referred to what Huy told him.   Mr. Gary was upset because he thought Huy’s quitting on William by decide not to have sessions at the daycare anymore so he suggested things that Huy still can do for William, like setting up the small group where William can learn to interact with other children but looked like Huy took it the wrong way: Huy said “He told me how/what to do my job!”.   I  explained to Mr. Gary that they’re here just to SHADOW William, they will not interfere or create opportunity because it’s not their job to do so; and Huy preferred natural settings.  Mr. Gary calmed down and he said, “If they’re here just to shadow then he’s right, William is fine here, he doesn’t need any help.”  Then Mr. Gary said “I should apologize to him”, I gave him Huy’s number, he called but Huy did not pick up; he left a message in Huy’s voice mailbox.

Then Mr. Gary turned to Ms. Chastitiy and another staff (?), “Is William lacking of anything that need to improve?”  They both said No; “William is very independent, he wakes up from his nap, put on his shoes, go to the play ground and play, doesn’t make any trouble at all.”  The only thing he needs to improve is Speech.  So they agreed that William doesn’t need any aid here.

Mr. Gary turned to me and said, “if there’s any tears these should be happy tears because William is at a different stage now”.    I agreed with him, William is so much different than he was 1 year ago before he has ABA sessions.  Of course I’m happy that he has growth so much but to say he doesn’t need any more help then I disagree.

I’m so touched that Mr. Gary did not think twice to argue with Huy to fight for William’s benefits.  Other daycare’s director would careless about an ABA supervisor’s decision.  From bottom of my heart, thank YOU Mr. Gary!  I know all you want is the best for all your children under your supervision at the daycare.

On the way driving back to work, I realized that it must be the daycare staffs’ words that influenced Huy’s decision.  They all said William is doing fine.  I just hope that what they said is true.  Although I’m very skeptical about that because to them if a boy doesn’t make any trouble, it means he’s doing fine.

Bottom line is that as a Mom, who knows his son the best, I still think William needs someone to encourage him to participate and socialize at the daycare; otherwise he’d be often stand or sit alone near the fence , just like when I dropped him off in the morning during last summer break.  When William has school in the morning, his time at the daycare is not that much so I would not worry about that too much; but when the school is off and he has to stay at the day care all day, it hurts me when I see him standing and holding on to the fence looking at my car as I drive away.  Other children at his age would just run off to his friends, say hi and play in the group.  Our boy would just stand there and watch with careless  and emotionless eyes.

I felt hopeless that I can’t convince Huy to change his mind.  He took over the case for only a few months; at first he cut the hours (we lost 7 hours/week)  and now plans to stop ABA sessions at the daycare, and based on what? Doesn’t he need to base on the ABC data to decide?   What would another mom do in this case?

IEP Annual Meeting – 2018

2:00 PM at Lincoln school meeting with Mrs. Newman about William’s annual IEP at his classroom 54.  Attendance included Ms. Stephany (speech therapist), principle assistant Mrs. Cynthia, and the General Ed teacher.  Mrs. Cynthia and general ed teacher asked to be excused because I have no questions for them.

Mrs. Newman went

Allergic to Peanuts Again!

Monday 11:30 AM. Got a call from the school nurse saying William was sitting in her office because his eyes were swollen.  She asked I I gave him any medicine in the morning, I said No;  She then asked if we ever used the EpiPen, I said “We never had to.”.  Then she said she’d let William stayed in her office to watch and would update me if there’s any news.

After the conversation, it struck me that she mention EpiPen!  it must be something worse that she was thinking about using EpiPen.  Soon she called me back and told me that the teachers gave out peanut ice cream, even though William did not get it but some how it affected him so that must be why he was scratching his eyes a lot.  And she asked that I picked him up.  It was 11:50 PM.

I came to the school right away; William was in the nurse office with Ms. Newman.  She said she threw away all the peanuts candies (Halloween is coming up, that was why she had candies) but some how William still got infected.  He didn’t throw up so that tells me that he did not eat any; so probably he touched it or smelled it.   He stopped scratching after the nurse gave him some Benadryl.

The nurse, Vanessa, said that she’s never seen any allergic case so she would not know if it happens right a way or after a period of time so she called Orange County office to find out.  They told her allergic reactions would take place right away.   I’m a little bit worried that the nurse is not very experienced so I’m a bit concern if she knows what to do and do things in the timely manner.

I took him home, made him a cheese sandwich, and gave him milk.  I cancelled the Speech therapy session so that he could stay home and rest.  After finish the milk, he felt asleep.  I went back to work, leaving him for Tim to watch.

His eyes are swollen and red

 

Getting Along Well?

Playing in Mama’s car before heading to the day care.

Thursday, picked him up at Lincoln school; Ms. Birdie brought William and Jordan out to the gate.  While waiting for Ms. Birdie to unlock the gate doors, William held both hands to the gate and hit his head slightly against it.  When I told him “No, don’t do that”,  he said “Do not bump your head!”.  I told Ms. Birdie that William has been talking a lot more which is good; then Ms. Birdie shared a story.  She said William, Jordan and Dyllan have been playing together at break times and when out in the playground, they would look for each other.  I’m so happy to hear that; the fact that he’s starting to make friends is a big big improvement.

I’m always afraid that he’d feel lonely at school but now that I heard that from Ms. Birdie, I’m so comforted.

 

Another Sleepy Day!

Thursday Morning.  As usual I woke William up around 7:30 AM, he rolled around on the bed and refused to get up.  When he finally did, he cried.  I asked why but he did not answer.  He cried when he peed, when I brushed teeth for him and stopped crying only when he got back to the bed.  I had a hard time to give him eye drops for his dry itchy eyes. But we managed to be at school on time.

2 more days before Autumn; it’s getting cold in the morning but still very hot during noon (75 degree)

This pic I took yesterday (not today)

Ms. Newman was not here; there was someone substituted for her. When I picked William up, she said “He’s a Smart Boy”.

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