Upset!

Recently when William is upset and cries, he put his fingers into his mouth!

Not sure where he learned this from but looking at this picture really saddens me. Would a normal kid act like this?

This morning after I put on his socks and went to the kitchen sink to wash my hands; when I came back and saw he already took off his socks! I raised my voice a bit, “Why did you take off your socks? Put them on!” – That was when he started to cry and put his fingers into his mouth. I bet the reason he took off his socks is because he was upset that I turned off the TV. He wanted to turn off the TV himself. He kept whining “I want to turn off TV” while I was carrying him from the bedroom to the door.

I told you, “Put on your socks or I’ll send you to grandma” and then I sat on the couch waiting for his actions. After a while, he sat down on the floor, kicked/pulled the entrance rug, and tried to put 1 sock on. “I need help!”- He said.

I ended up put the socks on for him because we were getting late. While I was doing that, he saw my new water bottle, he took it and played with it. Soon after, he’s so attached to the bottle that he stopped crying, and acted as nothing has just happened. We walked to the car, put on his seat belt, he ate the biscuits while I was diving him to the day care.

He’s easy to forget like that!

He kicked the rug while trying to put on his sock

Arrived at the day care, I let him sit in the car to finish his biscuits before going in.

Every morning I have to deal with his whining, “I want to scratch my back!” so I have to scratch his itch before I can get him to go brush his teeth to get ready to the daycare. My days always start with struggles.

I hope one day when he grows up more, he’ll give me less headache.

Another Day …

Another day at the day care. As soon as he went thru the little door, he sat down on the floor and scratched his legs! So I went in, pulled out the chair and told him to sit on the chair, not the floor.

I remember when he first started here, he’d lie down on the same spot. So nothing has improved. He has no awareness that people would get in /out that little door and might step on him.

I’ll try to remind him not to sit on the floor or ground; hopefully one time he’ll stop doing that.

I took this picture thru the shelve, the little door is on the right.

Lonely Boy

Tuesday 8:30 AM

Dropped William off at the daycare today, while I was sign up, he sat right next to the kid entrance door with the lunch bag next to him. So I came in, put his lunch back away and asked him to go outside to play. He said his belly hurt and wanted me to rub. So I told him to wait because I needed to replace his swim suit with the new set I bought from home. He followed me outside to the wooden shelve where they put the children’s swimming stuffs.

So I rubbed his belly; then he wanted to go to the restroom. He sat on the toilet for quite a bit. Then when he was done, I asked him to go outside but he refused. He sat down on the floor in the corner next to the restroom. I told him to go outside several times, finally he did but as soon as he got out of the door, he sat down on the ground! I told him to go sit on any chair because the ground is dirty. He refused to stand up; until I told him I’d rub his belly if he sits on the chair. That’s when he followed me to sit on the bench in the playground. I rubbed his belly a little bit more; but I needed to leave for work so I told him to continue sit there.

As soon as I stood up and turned my back about to leave, he went back inside and sat in that same corner! I came in to ask him again to go out and sit on the chair. “I want mama to go to work!” – he said.

I guess he wanted to be left alone.

Left is the restroom, right is the door to the play yard. He leaned on the door that leads to Yellow Bird Classroom.

I don’t mind if he sits by himself but the fact that he sat on the floor near the restroom really sadden me. Plus, he leaned on the door; what if someone opens the door then he’d get hurt! After 4 years at the same daycare, I thought he’d be better at this place but obviously nothing has changed. He acts the same way as did the first few months when he started going here.

I looked around, Ms. Rose Mary and Jennifer and the new teacher were busy outside with other kids; no one really paid attention to him.

I left the daycare with broken heart and tears on my eyes. What kind of a mom I am that I left my only son there feeling lonely and unhappy. But there’s really nothing I can do; unless I quit my job and stay home to take care of him. Finally, I can’t do that.

Closer look. He has been itchy a lot lately.

Social Group Is Suspended!

William’s compliance is getting worse so Jody/Elizabeth recommended that we stop sending William to social group on Saturdays.  So from 7/20/2019 the session with Brenda will be at home instead at TasKids office.

“William bad behaviors of not listening and taking toys away from his peers affect other children” – Jody said.

I felt sad when I heard that; I’m always hoping that with Social Group, he can improve his social skills and learn how to interact with other children; so that he’s less likely to sit in the corner all by himself.

Another reason that I want him to go to Social Group is because I think it’s more fun to have sessions outside of the house settings. They have all kind of activities like read book, craft, dance; and especially when there’s a birthday party, he get to have a balloon which he likes.

Now that the session is held at home, a 3 hour session is too long!

“We will resume Social Group when his’s compliance level is improved” – Jody continued.

With William’s current behaviors, I can see that date will not coming soon!

Updates:

8/7/2019 We’ve had 3 sessions with Brenda on Saturdays at home since the stop going to the TasKids office. I could see that William is not enjoying time with Brenda; I guess he’s simply just bored. So I’m trying to find any events near by that we can go so that the whole session doesn’t have to be at home.

Typical ABA Session

Currently, we have ABA sessions on M, W, F, from 5:30 PM – 7:30 PM. Mondays & Fridays we have Thomas as William’s BT. He’s been with us for about a year now. On Fridays we have Brenda; which is our new BT for about few months. Brenda is also responsible for Social Groups on Saturdays from 9:00 AM – 12:00 PM.

A typical ABA session at home would be Thomas/Brenda asking William what he wants to do or what game he wants to play. Most of the time I’d be cooking our dinner while listening to their conversations. Some times I sit down and watch them. We’re so lucky to have BTs who are patient and dedicated to their job.

ABA session with Thomas

Now it’s summer so some times we go out to the back yard and William plays in the trampoline. We also walk around the neighborhood to practice our goals of “Asking permission/Elopement”. William tends to run off to whatever he wants so the goal is for him to ask permission before he goes and to stay next to mom & dad when going out.

I Want to Sleep At Home

1:00 PM

Picked William up at Martin Elementary School and dropped him off at Children’s World Preschool. While I was unbuckling, I said “Go in and sleep ok?”

“No!”, he said.

“Why Not?” – I was surprised.

“I want to sleep at home!” – I was a bit shocked because he’s never said that before.

It shows that he’s now trying to use words to express what he wants. Second, it means he’s actually thinking, he feels the difference between home and daycare.

“Mama has to go to work, so William sleeps at the daycare, ok?”

He did not say anything, looked like he was ok with that.

I’m happy and sad at the same time. Sad because we have no-one at home to watch him so that he can stay home; it’s only a 4 hours before we’re off work. Happy because my boy is growing up fast and his language skill is improved a lot. He observes more and talks more.

All the hard works actually pay off.

William has had ABA sessions since he was 2 years old: spend at least 3 hours a day with a therapist every day. While other children his age can learn simple things easily and naturally; he has to learn it over and over again so many times in order for him to get it. Lots of frustrations, tears and tantrums along the way, but I’m happy with the progress he has made.

There’s still lots of things William needs to improve and learn but regardless, I’m so proud of him!

Love you, Son!

Loves The Ground!

Monday Morning, 7:50 AM. Took William to the school as usual. Ms. Newman was waiting at the gate but he refused to go in. So I picked him up and took him to get inside the gate but he sat down on the ground and refused to go. Then finally I persuaded him to stand up, I held his hand and handed it over to Ms. Newman then he sat down again and this time lied on his backpack on the ground!

He only stood up and went with Ms. Newman when I asked him if he wanted to to swim instead.

Today I had a meeting with Ms. Newman about William’s progress around 1:00 PM, about the time that they are dismissed from school. Ms. Birdie took him to the gate where Tim was waiting. From his classroom I saw him lied on his backpack again when they got to the gate! Ms. Birdie told me that as soon as he saw his dad, he lied on the ground and refused to get up.

William’s favorite place when we go out is the floor; whenever he’s not happy he’d just lie on the floor , doesn’t matter where it is: near the door, the shopping aisle, parking lot, etc.

I try to use the things that he likes to make him stand up but some time it doesn’t work. It’s so exhausted when he behaves like this.

William lied down right behind the gate.
Ms. Newman tried to get him up but he refused.

No Awareness Of Safety

Thursday Morning. Woke him up at 7:30 AM, as usual he whined when I was trying to get him brush his teeth; but today he kept whining while I put on lotion on his body and dressed him up. When I carried him out the door he whined again, “I want to turn off the light”, so I put him down on the bench, ran back to the bed room to turn off the light.

Taking him on his stroller to school. At the traffic light stop, as usual he always wants to press the button on the pole so I took him there; and he pressed it. When the walk light was on, I started to push the stroller, and he started to whine and put his feet down on the ground that I could not push the stroller: he wanted to push the button again! Of course, we missed that walk light so had to wait for the next walk light.

It did not end there, we finally got to the school gate, Ms. Newman and Sandy were busy picking up his friends from the bus, I un-buckled his seat bell and was getting his backpack out of the stroller, he stood up and started to run toward the road. I ran after him; and only could catch him when he stopped. Luckily that he stopped on the side walk, not on the middle of the road!

Watching him walked with his teachers and friends to the classroom behind the gate, I felt so sad and helpless. This is how my morning goes everyday, mostly depends on his mood on that day (today he was cranky), which draws all the energy from me. I really don’t mind doing the hard work, but the thought that he’d never get better, and I have to deal with this for the rest of my life really makes me feel down.

“No Gary!”

Wednesday Noon 1:00 PM. Picked him up at Lincoln school; He wanted me to carry him up and I heard him said “Time to go home, no Gary!”. I wondered what happened at the daycare that he did not want to go.

When we got to the day care and I carried him to his tiny bed, he threw away his lunch box, luckily it did not his anyone, and ran out of the door. Yesterday he ran out of the door too.

So something must happened that makes him not want to go to the daycare. I asked his dad how William looks when he picked him up: “He looked fine, he ran to me when he saw me. Some times he was playing in the room, some time in Mr. Gary’s office.”

I wish he could talk so that he can tell me what’s going on and what’s his feelings are. I guess not being able to talk about what he feels really makes him feels frustrated and he has to act out.